Dedicated to finding cures for deaf-blindness.
Together, we can find a treatment for Usher 3 Syndrome.
$17 million
raised to fund research programs to date
Press play to see what life with Usher 3 syndrome is like.
What is Usher 3?
What is a life without hearing a vision?
Usher syndrome is a rare inherited disease that leads to progressive vision and hearing loss. USH3 is the rarest type that can end in complete blindness and deafness.
Get Involved
Fighting rare diseases is a collaborative effort.
Collection of data is crucial to supporting Usher 3 research. Join the global patient registry database in order to support the scientists and researchers dedicated to finding a treatment.
“Finding a cure for Usher 3 requires not only scientific innovation, but also unwavering support for disease research.”
— Cindy Elden, Founder of Usher III Initiative
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